The purpose of this website is to investigate people’s online search behaviour for medical information.
You will be shown two photographs and asked to identify any noticeable problem, and search for a possible diagnosis.
Please take as much time as you require. Most people spend about 10 minutes.
Your identity is not required; however, you should include your email address if you would like to receive the results of this project.
Human Research and Ethics Approval has been granted to conduct this research project (RVEEH HREC: 13/1113HS). The researchers are obliged to abide by the regulations of the approval.
How did you hear about this project?
Family or Friend
Which state do you live in?
Where do you live?
In a city
Do you have any children or grandchildren?
Number of children:
Number of grandchildren:
You have recently taken these photographs of a family member on separate occasions.
Do you notice anything about these photographs?
If you had taken these photographs would you be concerned?
How would you initially find out more information about what you notice?
You decide to search the internet...
In the field below please search to find out what you think could be wrong with their eye. Click the next button when you think you know what it could be and what you should do about it. Please click on at least one search result.
What do you think the most likely diagnosis is?
Could this be anything else?
Please list what else it could be?
Would you do anything about this?
What would you do?
How Urgently would you do this?
Please list your reasons why not
Do you work or have a background in healthcare?
Final Demographics Data Question:
Do any of your children/grandchildren have any known eye problems?
Indicate which eye problem/s your children have been treated for:
Often leukocoria is seen by the parent in family photographs or with the naked eye. Delay in diagnosis for retinoblastoma is common and can result in further advancement of the disease with adverse consequences. All published reports on delayed diagnosis of retinoblastoma recommend improved education for health practitioners and the general community alike of the potentially sinister sign of leukocoria. Such education programs have not been forthcoming, except for sporadic cases reported in the newspapers and magazines. Earlier diagnosis could save the child's vision, eye or their life.
This research project aims to identify the free text search words people might use to seek further information on photographic findings using online search engines. By determining the most commonly used free text search words, recommendations and changes can be made to ensure prompt access and direction via the internet to appropriate, reliable information regarding retinoblastoma and cataract, and the importance of seeking urgent referral to a medical practitioner. This better access may in turn lead to reduced delays in diagnosis and improved outcomes for the affected individual.
This work was supported by an Australian National Health and Medical Research Council Centre of Research Excellence in Translation of Genetic Eye Research.
Sandra Staffieri, Lisa Kearns and Alex Hewitt
Clinical Genetics Unit
Centre for Eye Research Australia
Level 1, 32 Gisborne Street
East Melbourne, VIC 3002
Lions Eye Institute
2 Verdun Street,
Nedlands, WA 6009
Department of Ophthalmology
Bedford Park, SA 5042